Category Archives: child

Desperate Mum Says She’ll Break Law To Get Epileptic Alfie, 9, Medicinal Cannabis

Hannah Deacon says it is ‘disgraceful’ that the supply of drugs helping severely epileptic Alfie will be stopped in three months – the family, from Kenilworth, Warwickshire, are considering all options. The mother of a severely epileptic boy has vowed to break the law if ministers cannot get her son the medicinal cannabis he needs. […]

Charlie Hughes: Parents Of Boy With Epilepsy Drop Nice High Court Challenge

The parents of a three-year-old boy with severe epilepsy have dropped a legal challenge after guidelines on prescribing cannabis were ‘clarified’. Charlie Hughes went from having up to 120 seizures a day to fewer than 20, after receiving cannabis oil privately. Medical cannabis was legalised in 2018, but few NHS prescriptions have been handed out […]

Mother Fears Son Could Die As Brexit Stops Medical Cannabis Supply

Government gives two weeks notice that access to epilepsy treatment for nine-year-old Alfie Dingley will end. The mother of a nine-year-old boy with a rare and severe form of epilepsy has told how she fears her son could die after the government announced his supply of a life-changing cannabis medicine from the Netherlands would stop […]

Cannabis Oil: ‘I’ve Spent £34,000 To Keep My Epileptic Daughter Alive’

Tannine Montgomery says she has spent £34,000 and broken the law to keep her daughter alive. Six-year-old Indie-Rose, from Clare in Suffolk, has severe epilepsy and can have up to 50 seizures a month without medical cannabis oil. Since it was legalised two years ago, only a handful of NHS prescriptions have been issued. The […]

Telford Girl’s ‘Miracle’ Response To Medical Cannabis

A seven-year-old with a rare form of epilepsy has made an “amazing” recovery after beginning a medicinal cannabis oil treatment, her family said. Sienna Richardson, from Telford, was diagnosed with Landau Kleffner syndrome. The family secured a prescription from a private practice for her – which her mother said had been a “miracle”. They are […]

Medical Cannabis Has Saved My Daughter’s Life

Last January, my daughter Jorja became the first child in the UK to be prescribed medical cannabis. She was born with a severe form of epilepsy that had left her suffering over 30 seizures a day. By the age of just one, she was on a mix of six different drugs, including powerful sedatives not […]

Mother Of Epileptic 15-Year-Old Urges Government To Provide Medical Cannabis On NHS

Charlotte Caldwell pleads with health secretary Matt Hancock to ‘intervene and stop this torturous ordeal’. The mother of a 15-year-old boy who can suffer from hundreds of seizures a day has called on the health secretary Matt Hancock to intervene and allow him a prescription for medical cannabis on the NHS. Charlotte Caldwell’s son Billy […]

Parents of Toddler With Severe Epilepsy Seek Legal Review of Cannabis Oil Guidelines

Charlie Hughes, 3, has rare condition called West syndrome, but NHS-approved medicines have been ineffective. The parents of a toddler with severe epilepsy are seeking a landmark judicial review of rigid guidelines that effectively prevent the NHS from prescribing medical cannabis oil, a substance that they say has allowed their son to live a much […]