The mother of a nine-year-old boy with a severe and rare form of epilepsy who was told Brexit would end the supply of a life-changing cannabis medicine that saved her son’s life has been given a six-month reprieve. Hannah Deacon said she was hugely grateful after being given the lifeline by the Dutch government, which […]
Category Archives: epilepsy
Government gives two weeks notice that access to epilepsy treatment for nine-year-old Alfie Dingley will end. The mother of a nine-year-old boy with a rare and severe form of epilepsy has told how she fears her son could die after the government announced his supply of a life-changing cannabis medicine from the Netherlands would stop […]
Tannine Montgomery says she has spent £34,000 and broken the law to keep her daughter alive. Six-year-old Indie-Rose, from Clare in Suffolk, has severe epilepsy and can have up to 50 seizures a month without medical cannabis oil. Since it was legalised two years ago, only a handful of NHS prescriptions have been issued. The […]
Medical cannabis prescriptions can help reduce seizures in youngsters. Children with severe epilepsy are at risk of losing access to potentially life-saving medical cannabis at the end of the Brexit transition period on 31 December 2020. Campaigners say that some 40 severely epileptic children and their families may no longer be able to obtain medication […]
Zaki, 17, likes to point out houses that he’d like to have when he turns 18 next year. That was something unimaginable seven years ago, his mother, Heather Jackson recalled, when he used to have around 200 seizures a day. Nowadays, with CBD, “when he does have seizures, they’re brief” and don’t hurt him. By […]
The NHS has repeatedly refused to fund medical cannabis for children with severe epilepsy, families have said. Three prescriptions are thought to have been written for “whole plant cannabis” oil since it was legalised two years ago, campaign group End Our Pain say. But at least 20 families are paying for costly private prescriptions after […]
Last January, my daughter Jorja became the first child in the UK to be prescribed medical cannabis. She was born with a severe form of epilepsy that had left her suffering over 30 seizures a day. By the age of just one, she was on a mix of six different drugs, including powerful sedatives not […]
Charlotte Caldwell pleads with health secretary Matt Hancock to ‘intervene and stop this torturous ordeal’. The mother of a 15-year-old boy who can suffer from hundreds of seizures a day has called on the health secretary Matt Hancock to intervene and allow him a prescription for medical cannabis on the NHS. Charlotte Caldwell’s son Billy […]
The parents of a baby girl who suffers severe seizures claim medicinal cannabis is saving her life. Three weeks ago, the 10-month-old was in ICU and doctors were preparing to put her into a coma and remove half her brain. Baby Luella has a rare type of epilepsy called West syndrome which causes her to […]
It’s now a widely-held and recognized belief that cannabis helps patients with epilepsy maintain a better quality of life and find respite from seizures. With the Centers for Disease Control (CDC) citing that epilepsy affects over 3.4 million Americans, identifying a key function in the disease’s ability to target certain parts of the body gives […]