Category Archives: epilepsy

Desperate Mum Says She’ll Break Law To Get Epileptic Alfie, 9, Medicinal Cannabis

Hannah Deacon says it is ‘disgraceful’ that the supply of drugs helping severely epileptic Alfie will be stopped in three months – the family, from Kenilworth, Warwickshire, are considering all options. The mother of a severely epileptic boy has vowed to break the law if ministers cannot get her son the medicinal cannabis he needs. […]

Charlie Hughes: Parents Of Boy With Epilepsy Drop Nice High Court Challenge

The parents of a three-year-old boy with severe epilepsy have dropped a legal challenge after guidelines on prescribing cannabis were ‘clarified’. Charlie Hughes went from having up to 120 seizures a day to fewer than 20, after receiving cannabis oil privately. Medical cannabis was legalised in 2018, but few NHS prescriptions have been handed out […]

Netherlands To Supply Medical Cannabis Until July Despite Brexit Ban

The mother of a nine-year-old boy with a severe and rare form of epilepsy who was told Brexit would end the supply of a life-changing cannabis medicine that saved her son’s life has been given a six-month reprieve. Hannah Deacon said she was hugely grateful after being given the lifeline by the Dutch government, which […]

Mother Fears Son Could Die As Brexit Stops Medical Cannabis Supply

Government gives two weeks notice that access to epilepsy treatment for nine-year-old Alfie Dingley will end. The mother of a nine-year-old boy with a rare and severe form of epilepsy has told how she fears her son could die after the government announced his supply of a life-changing cannabis medicine from the Netherlands would stop […]

Cannabis Oil: ‘I’ve Spent £34,000 To Keep My Epileptic Daughter Alive’

Tannine Montgomery says she has spent £34,000 and broken the law to keep her daughter alive. Six-year-old Indie-Rose, from Clare in Suffolk, has severe epilepsy and can have up to 50 seizures a month without medical cannabis oil. Since it was legalised two years ago, only a handful of NHS prescriptions have been issued. The […]

Brexit Letter Threatens To Leave Epileptic Children Without Access To Life-Saving Medicine

Medical cannabis prescriptions can help reduce seizures in youngsters. Children with severe epilepsy are at risk of losing access to potentially life-saving medical cannabis at the end of the Brexit transition period on 31 December 2020. Campaigners say that some 40 severely epileptic children and their families may no longer be able to obtain medication […]

Cannabis Gave Her Child A Future: Now She Helps Other Families

Zaki, 17, likes to point out houses that he’d like to have when he turns 18 next year. That was something unimaginable seven years ago, his mother, Heather Jackson recalled, when he used to have around 200 seizures a day. Nowadays, with CBD, “when he does have seizures, they’re brief” and don’t hurt him. By […]

NHS ‘Refuses’ Medical Cannabis for Children with Epilepsy

The NHS has repeatedly refused to fund medical cannabis for children with severe epilepsy, families have said. Three prescriptions are thought to have been written for “whole plant cannabis” oil since it was legalised two years ago, campaign group End Our Pain say. But at least 20 families are paying for costly private prescriptions after […]

Medical Cannabis Has Saved My Daughter’s Life

Last January, my daughter Jorja became the first child in the UK to be prescribed medical cannabis. She was born with a severe form of epilepsy that had left her suffering over 30 seizures a day. By the age of just one, she was on a mix of six different drugs, including powerful sedatives not […]

Mother Of Epileptic 15-Year-Old Urges Government To Provide Medical Cannabis On NHS

Charlotte Caldwell pleads with health secretary Matt Hancock to ‘intervene and stop this torturous ordeal’. The mother of a 15-year-old boy who can suffer from hundreds of seizures a day has called on the health secretary Matt Hancock to intervene and allow him a prescription for medical cannabis on the NHS. Charlotte Caldwell’s son Billy […]